Abstract
Background
Accounting for patient views and context is essential in evaluating and improving patient-centered care initiatives, yet few studies have examined the patient perspective. In the Veterans Affairs (VA) Health Care System, several VA facilities have transitioned from traditionally disease- or problem-based care to patient-centered care. We used photovoice to explore perceptions and experiences related to patient-centered care among Veterans receiving care in VA facilities that have implemented patient-centered care initiatives.
Design
Participants were provided prompts to facilitate their photography, and were asked to capture salient features in their environment that may describe their experiences and perceptions related to patient-centered care. Follow-up interviews were conducted with each participant to learn more about their photographs and intended meanings. Participant demographic data were also collected.
Results
Twenty-two Veteran patients (n = 22) across two VA sites participated in the photovoice protocol. Participants defined patient-centered care broadly as caring for a person as a whole while accommodating for individual needs and concerns. Participant-generated photography and interview data revealed various contextual factors influencing patient-centered care perceptions, including patient–provider communication and relationships, physical and social environments of care, and accessibility of care.
Conclusions
This study contributes to the growing knowledge base around patient views and preferences regarding their care, care quality, and environments of care. Factors that shaped patient-centered care perceptions and the patient experience included communication with providers and staff, décor and signage, accessibility and transportation, programs and services offered, and informational resources. Our findings may be integrated into system redesign innovations and care design strategies that embody what is most meaningful to patients.
Similar content being viewed by others
References
Epstein RM, Street RL. The values and value of patient-centered care. Ann Fam Med. 2011;9:100–3.
Kellerman R, Kirk L. Principles of the patient-centered medical home. Am Fam Physician. 2007;76:774–5.
Lorig K. Patient-centered care depends on the point of view. Health Educ Behav. 2012;39:523–5.
Institute of Medicine. Crossing the quality chasm: a new health system for the 21st century. Washington, DC: The National Academies Press; 2001.
Shaller D. Patient-centered care: what does it take? New York: The Commonwealth Fund; 2007.
Weiner SJ, Schwartz A, Sharma G, et al. Patient-centered decision making and health care outcomes: an observational study. Ann Intern Med. 2013;158:573–9.
Rathert C, Wyrwich MD, Boren SA. Patient-centered care and outcomes: a systematic review of the literature. Med Care Res Rev. 2012;70:351–79.
Epstein RM, Fiscella K, Lesser CS, et al. Why the nation needs a policy push on patient-centered health care. Health Aff (Millwood). 2010;29:1489–95.
Blaum C, Tremblay A, Forman J, et al. Improving chronic illness care for veterans within the framework of the patient-centered medical home: experiences from the Ann Arbor patient-aligned care team laboratory. Transl Behav Med. 2011;1:615–23.
Hinojosa R, Hinojosa MS, Nelson K, et al. Veteran family reintegration, primary care needs, and the benefit of the patient-centered medical home model. J Am Board Fam Med. 2010;23:770–4.
Meterko M, Wright S, Lin H, et al. Mortality among patients with acute myocardial infarction: the influences of patient-centered care and evidence-based medicine. Health Serv Res. 2010;45:1188–204.
LaVela SL, Schectman G, Gering J, et al. Understanding health care communication preferences of Veteran primary care users. Patient Educ Couns. 2012;88:420–6.
LaVela SL, Gering J, Schectman G, et al. Optimizing primary care telephone access and patient satisfaction. Eval Health Prof. 2012;35:77–86.
Gerteis M, Edgman-Levitan S, Daley J, et al. Through the patient’s eyes: understanding and promoting patient-centered care. San Francisco: Jossey-Bass; 1993.
Bechtel C, Ness DL. If you build it, will they come? Designing truly patient-centered health care. Health Aff (Millwood). 2010;29:914–20.
Luxford K, Safran DG, Delbanco T. Promoting patient-centered care: a qualitative study of facilitators and barriers in healthcare organizations with a reputation for improving the patient experience. Int J Qual Health Care. 2011;23:510–5.
Baker TA, Wang CC. Photovoice: use of a participatory action research method to explore the chronic pain experience in older adults. Qual Health Res. 2006;16:1405–13.
Catalani C, Minkler M. Photovoice: a review of the literature in health and public health. Health Educ Behav. 2010;37:424–51.
Wang C, Burris M. Photovoice: concept, methodology, and use for participatory needs assessment. Health Educ Behav. 1997;24:369–87.
Wang CC, Yi WK, Tao ZW, et al. Photovoice as a participatory health promotion strategy. Health Promot Int. 1998;13:75–86.
Yamasaki J. Picturing late life in focus. Health Commun. 2010;25:290–2.
True J, Fritch E. Understanding and addressing barriers to care for veterans of the wars in Iraq and Afghanistan: insights from a community-engaged research project [poster]. AcademyHealth Annual Research Meeting; 23–25 Jun 2013; Baltimore.
Lorenz LS, Chilingerian JA. Using visual and narrative methods to achieve fair process in clinical care. J Vis Exp. 2011;16:2342–8.
Stokols D. Translating social ecological theory into guidelines for community health promotion. Am J Health Promot. 1996;10:282–98.
Davis K, Schoenbaum SC, Audet AM. A 2020 vision of patient-centered primary care. J Gen Intern Med. 2005;20:953–7.
Arora NK, McHorney CA. Patient preferences for medical decision making: who really wants to participate? Med Care. 2005;38:335–41.
Street RL Jr, Gordon HS, Ward MM, et al. Patient participation in medical consultations: why some patients are more involved than others. Med Care. 2005;43:960–9.
Bernabeo E, Holmboe ES. Patients, providers, and systems need to acquire a specific set of competencies to achieve truly patient-centered care. Health Aff (Millwood). 2013;32:250–8.
Hibbard JH. Engaging health care consumers to improve the quality of care. Med Care. 2003;41:I61–70.
Ferguson LM, Ward H, Card S, et al. Putting the ‘patient’ back into patient-centered care: an education perspective. Nurse Educ Prac. 2013;13:283–7.
Moreau A, Carol L, Dedianne MC, et al. What perceptions do patients have of decision making (DM)? Toward an integrative patient-centered care model. A qualitative study using focus-group interviews. Patient Educ Couns. 2012;87:206–11.
Zandbelt LC, Smets EM, Oort FJ, et al. Medical specialists’ patient-centered communication and patient-reported outcomes. Med Care. 2007;45:330–9.
Wang C, Burris M. Empowerment through photo novella: portraits of participation. Health Educ Behav. 1994;21:171–86.
Acknowledgements
This material is based upon work supported by the Department of Veterans Affairs, Office of Patient-Centered Care and Cultural Transformation, and the Office of Research and Development Health Services Research and Development, Quality Enhancement Research Initiative (PCE-13-002).
Sherri LaVela and Salva Balbale contributed to the study concept, design, and data collection. Megan Morris and Salva Balbale contributed to data analysis and interpretation. All authors, Sherri LaVela, Megan Morris, and Salva Balbale, contributed to the manuscript preparation and review. Salva Balbale will act as the overall guarantor of this manuscript.
None of the authors (Salva N. Balbale, Megan A. Morris and Sherri L. LaVela) have financial disclosures or any conflicts of interests.
The views expressed in this manuscript are those of the authors and do not necessarily reflect the position or policy of the Department of Veterans Affairs.
Author information
Authors and Affiliations
Corresponding author
Electronic supplementary material
Below is the link to the electronic supplementary material.
Rights and permissions
About this article
Cite this article
Balbale, S.N., Morris, M.A. & LaVela, S.L. Using Photovoice to Explore Patient Perceptions of Patient-Centered Care in the Veterans Affairs Health Care System. Patient 7, 187–195 (2014). https://doi.org/10.1007/s40271-014-0044-5
Published:
Issue Date:
DOI: https://doi.org/10.1007/s40271-014-0044-5