Abstract
Information about family coping when a child with a chronic illness is hospitalized for procedures related to his or her illness is needed. The current research presents the results of two pilot studies designed to assess family resilience and coping, during a hospitalization for medical procedures for a child with a chronic condition. Sixty-one parents participated in the first study and reported on their child’s hospital experiences and completed a survey designed to assess family coping. Twelve mothers and one grandmother completed interviews examining their perceptions of their coping, siblings’ coping, and coping of the child with an illness for study two. Results of Study 1 indicated parents’ perceived the family as resilient. Cognitive strategies were used to see the hospital stay as positive for the child or to accept what had to occur as having the possibility of improving the child’s life. Some of the mothers mentioned financial stress as being difficult for the family. Results of Study 2 also supported resilient functioning for mothers, siblings, and children with illnesses. Mothers reported they stayed strong for their child. Siblings could serve as protectors, helpers, and companions and were described as adapting well. Children with illnesses used distraction (e.g., play, art, music) to facilitate their coping. Findings of this study indicated parents perceived the family as coping well and supporting the child with an illness. Future research will need to assess perceptions of siblings and fathers and assess family members’ perspectives at different times over the course of children’s illnesses.
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References
Arëstedt, L., Benzin, E., & Persson, C. (2015). Families living with chronic illness: Beliefs about illness, family, and health care. Journal of Family Nursing, 21(2), 206–231. https://doi.org/10.1177/1074840715576794.
Bethell, C. D., Kogan, M. D., Strickland, B. B., Schor, E. L., Robertson, J., & Newacheck, P. W. (2011). A national and state profile of leading health problems with healthcare quality for U.S. children: Key insurance disparities and across-state variations. Academic Pediatrics, 11(3 Supp). S22–S33. https://doi.org/10.1016/j.acap.2010.08.011.
Chen, E., Brody, G. H., & Miller, G. E. (2017). Childhood close family relationships and health. American Psychologist, 72(6), 555–566. https://doi.org/10.1037/amp0000067.
Churchill, S. S., Villareale, N. L., Monaghan, T. A., Sharp, V. L., & Kieckhefer, G. M. (2010). Parents of children with special health care needs who have better coping skills have fewer depressive symptoms. Maternal and Child Health Journal, 14, 47–57. https://doi.org/10.1007/s10995-008-0435-0.
Clark, C. D. (2003). In sickness and in play: Children coping with chronic illness. Brunswick, N.J.: Rutgers University Press.
Creswell, J. W. (1998). Qualitative inquiry and research design: Choosing among five traditions. Thousand Oaks, CA: Sage.
Ferro, M. A., & Boyle, M. H. (2015). The impact of chronic physical illness, maternal depressive symptoms, family functioning, and self-esteem on symptoms of anxiety and depression in children. Journal of Abnormal Child Psychology, 43, 177–187. https://doi.org/10.1007/s10802-014-9893-6.
Fobair, P. A., & Zabora, J. R. (1995). Family functioning as a resource variable in psychosocial research: Issues and measures. In B. Curbow & M. R. Somerfield (Eds.), Psychosocial resource variables in cancer studies: Conceptual and measurement issues (pp. 97–114). New York: Haworth Medical Press.
Halfon, N., & Newacheck, P. W. (2010). Evolving notions of childhood chronic illness. Journal of the American Medical Association, 303, 665–666.
Harris, J. A., Newcomb, A. F., & Gewanter, H. L. (1991). Psychosocial effects of Juvenile Rheumatic Disease. Arthritis Care and Research, 4(3), 123–130.
Henry, C. S., Morris, A. S., & Harrist, A. W. (2015). Family resilience: Moving into the third wave. Family Relations, 64, 22–43. https://doi.org/10.1111/fare.12106.
Houtzager, B. A., Grootenhuis, M. A., Caron, H. N., & Last, B. F. (2004). Quality of life and psychological adaptation in siblings of paediatric cancer patients, 2 years after diagnosis. Psycho-Oncology, 13, 499–511. https://doi.org/10.1002/pon.759.
Incledon, E., Williams, L., Hazell, T., Heard, T. R., Flowers, A., & Hiscock, H. (2015). A review of factors associated with mental health in siblings of children with chronic illnesses. Journal of Child Health Care, 19(2), 182–194. https://doi.org/10.1177/1367493513503584.
Lobato, D., Faust, D., & Spirito, A. (1988). Examining the effects of chronic disease and disability on children’s sibling relationships. Journal of Pediatric Psychology, 13(3), 389–407.
Martin, S., Calabrese, S. K., Wolters, P. L., Walker, K. A., Warren, K., & Hazra, R. (2012). Family functioning and coping styles in families of children living with cancer and HIV disease. Clinical Pediatrics, 51(1), 58–64. https://doi.org/10.1177/0009922811417300.
Martin, S. C., Wolters, P. L., Klaas, P. A., Perez, L., & Wood, L. V. (2004). Coping styles among families of children with HIV infection. Aids Care-Psychologi, 16(3), 283–292. https://doi.org/10.1080/095401204120410001665295.
Martire, L. M., & Helgeson, V. S. (2017). Close relationships and the management of chronic illness: Associations and interventions. American Psychologist, 72(6), 601–612. https://doi.org/10.1037/amp0000066.
McCubbin, H. I., Olson, D., & Larson, A. (1981). Family Crisis Oriented Personal Scales (F-COPES). In H. I. McCubbin, A. I. Thompson, & M. A. McCubbin (1996) (Eds.), Family assessment: Resiliency, coping and adaptation- Inventories for research and practice (pp. 455–507). Madison: University of Wisconsin System.
McCubbin, H. I., Thompson, A. I., & McCubbin, M. A. (2001). Family measures: Stress, coping and resiliency: Inventories for research and practice. Kamehameha Schools: Honolulu Hawaii.
Miles, M. B., & Huberman, M. A. (1994). An expanded sourcebook: Qualitative analysis (2nd ed.). Thousand Oaks, CA: Sage.
Moore, M., & Russ, S. W. (2006). Pretend play as a resource for children: Implications for pediatricians and health professionals. Journal of Developmental and Behavioral Pediatrics, 27(3), 237–248.
Mullins., L. L., Molzon, E. S., Suorsa, K. I., Tackett, A. P., Pai, A. L. H., & Chaney, J. M. (2015). Models of resilience: Developing psychosocial interventions for parents of children with chronic health conditions. Family Relations, 64, 176–189. https://doi.org/10.1111/fare.12104.
Nabors, L., & Liddle, M. (2017). Perceptions of hospitalization by children with chronic illnesses and siblings. Journal of Child and Family Studies, 26(6), 1681–1691. https://doi.org/10.1007/s10826-017-0688-6.
Ollendick, T. H., & Schroeder, C. S. (2003). Encyclopedia of clinical child and pediatric psychology. New York: Kluwer Academic/Plenum Publishers.
Pietromonaco, P. R., & Collins, N. L. (2017). Interpersonal mechanisms linking close relationships to health. American Psychologist, 72(6), 531–542. https://doi.org/10.1037/amp0000129.
Pinquart, M. (2013). Do parent-child relationships and parenting behaviors differ between families with a child with and without chronic illness? A meta-analysis. Journal of Pediatric Psychology, 38(7), 708–721. https://doi.org/10.1093/jpepsy/jst020.
Reynolds, N., Mrug, S., Wolfe, K., Schwebel, D., & Wallander, J. (2016). Spiritual coping, psychosocial adjustment, and physical health in youth with chronic illness: A meta-analytic review. Health Psychology Review, 10(2), 226–243. https://doi.org/10.080117437199.2016.1159142.
Ritchie, J., & Lewis, J., (Eds.) (2003). Qualitative research practice: A guide for social science students and researchers. Thousand Oaks, CA: Sage.
Sharpe, D., & Rossiter, L. (2002). Siblings of children with a chronic illness: A meta-analysis. Journal of Pediatric Psychology, 27(8), 699–710. https://doi.org/10.1093/jpepsy/27.8.699.
Thoma, M. E., Hockenberry-Eaton, M., & Kemp, V. (1993). Life change events and coping behaviors in families of children with cancer. Journal of Pediatric Oncology Nursing, 10(3), 105–111.
Trute, B., & Hiebert-Murphy, D. (2002). Family adjustment to childhood developmental disability: A measure of parent appraisal of family impacts. Journal of Pediatric Psychology, 27(3), 271–280. https://doi.org/10.1093/jpepsy/27.3.271.
Wikström, B. (2005). Communicating via expressive arts: The natural medium of self-expression for hospitalized children. Pediatric Nursing, 31, 480–485.
Williams, P. D., Ridder, E. L., Setter, R. K., Liebergen, A., Curry, H., Piamjariyakul, U., & Williams, A. R. (2009). Pediatric chronic illness (cancer, cystic fibrosis) effects on well siblings: Parents’ voices. Issues in Comprehensive Pediatric Nursing, 32(2), 94–113. https://doi.org/10.1080/01460860902740990.
Zhang, Y., Wei, M., Shen, N., & Zhang, Y. (2015). Identifying factors related to family management during the coping process of families with childhood chronic conditions: A multi-site study. Journal of Pediatric Nursing, 30, 160–173. https://doi.org/10.1016/j.pedn.2014.10.002.
Author Contributions
L.N. designed and executed the study, assisted with data analyses, and wrote the paper. J.F.C. collaborated with study analyses and wrote the paper. M.L. collaborated with study analyses and wrote part of the results. K.W. collaborated with study analyses and wrote part of the results. S.S. assisted with study design and execution. C.O.S. collaborated with the writing and editing of the final manuscript.
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This research was unfunded.
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The Institutional Review Board at the University of Cincinnati approved these studies.
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Research involving human participants -- all procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
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Informed consenting processes were used for both studies.
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Nabors, L., Cunningham, J.F., Lang, M. et al. Family Coping During Hospitalization of Children with Chronic Illnesses. J Child Fam Stud 27, 1482–1491 (2018). https://doi.org/10.1007/s10826-017-0986-z
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DOI: https://doi.org/10.1007/s10826-017-0986-z