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Keeping a Sound Marriage: How Couples with Children with Autism Spectrum Disorders Maintain Their Marriages

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Abstract

This study focused on strengths and variables that contribute to marital successes for couples with children with autism spectrum disorders (in this article, referred to as “autism”). Particularly, the purpose of this study was to examine what husbands and wives with children with autism in contrast to couples with children who are typically developing identify as helpful to maintaining their marriages. Concept mapping methodology was used for this research study. Couples with children with autism and couples with children who are typically developing participated in telephone interviews and then grouped and rated the statements generated from their interviews. Groupings were translated into pictorial maps showing relationships and patterns. Couples with children with autism shared common perceptions about factors that help to keep their marriages strong: communication and shared foundational ideas about marriage. Communication was a cluster for all groups of husbands and wives. Only mothers of children with autism identified time for self-care as a distinct cluster.

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References

  • Altiere, M. J., & von Kluge, S. (2009). Family functioning and coping behaviors in parents of children with autism. Journal of Child and Family Studies, 18, 83–92.

    Article  Google Scholar 

  • Benson, P. R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal of Autism and Developmental Disorders, 36, 685–695.

    Article  PubMed  Google Scholar 

  • Benson, P. R., & Kersh, J. (2011). Marital quality and psychological adjustment among mothers of children with ASD: Cross-sectional and longitudinal relationships. Journal of Autism and Developmental Disorders, 41, 1675–1685.

    Article  PubMed  Google Scholar 

  • Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with autism spectrum disorders: The couple’s relationship. Focus on Autism and Other Developmental Disabilities, 24, 33–49.

    Google Scholar 

  • Brown, J. (2007). Fostering children with disabilities: A concept map of parent needs. Children and Youth Services Review, 29, 1235–1248.

    Article  Google Scholar 

  • Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Morbidity and Mortality Weekly Report, 61, SS-03.

    Google Scholar 

  • Crane, D. R., Middleton, K. C., & Bean, R. A. (2000). Establishing criterion scores for the Kansas Marital Satisfaction Scale and the Revised Dyadic Adjustment Scale. The American Journal of Family Therapy, 28, 53–60.

    Article  Google Scholar 

  • Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291.

    Article  PubMed  Google Scholar 

  • Eddy, L. L., & Walker, A. J. (1999). The impact of children with chronic health problems on marriage. Journal of Family Nursing, 5, 10–32.

    Article  Google Scholar 

  • Everitt, B. S., Landau, S., Leese, M., & Stahl, D. (2011). Cluster analysis. West Sussex: Wiley.

    Book  Google Scholar 

  • Fletcher, P. C., Markoulakis, R., & Bryden, P. J. (2012). The costs of caring for a child with an autism spectrum disorder. Issues in Comprehensive Pediatric Nursing, 35, 45–69.

    Article  PubMed  Google Scholar 

  • Freedman, B. H., Kalb, L. G., Zablotsky, B., & Stuart, E. A. (2012). Relationship status among parents of children with autism spectrum disorders: A population-based study. Journal of Autism and Developmental Disorders, 42, 539–548.

    Article  PubMed  Google Scholar 

  • Gau, S. S., Chou, M., Chiang, H., Lee, J., Wong, C., Chou, W., et al. (2012). Parental adjustment, marital relationship, and family function in families of children with autism. Research in Autism Spectrum Disorders, 6, 263–270.

    Article  Google Scholar 

  • Gray, D. E. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual & Developmental Disability, 27, 215–222.

    Article  Google Scholar 

  • Hamlyn-Wright, S., Draghi-Lorenz, R., & Ellis, J. (2007). Locus of control fails to mediate between stress and anxiety and depression in parents of children with a developmental disorder. Autism, 11, 489–501.

    Article  PubMed  Google Scholar 

  • Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., et al. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24, 449–457.

    Article  PubMed Central  PubMed  Google Scholar 

  • Herman, S., Onaga, E., Pernice-Duca, F., Oh, S., & Ferguson, K. (2005). Sense of community in clubhouse programs: Member and staff concepts. American Journal of Community Psychology, 36, 343–356.

    Article  PubMed  Google Scholar 

  • Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9, 125–137.

    Article  PubMed  Google Scholar 

  • Hock, R. M., Timm, T. M., & Ramisch, J. L. (2012). Parenting children with autism spectrum disorders: A crucible for couple relationships. Child & Family Social Work. doi:10.1111/j.1365-2206.2011.00794.x.

    Google Scholar 

  • Jackson, K. M., & Trochim, W. M. K. (2002). Concept mapping as an alternative approach for the analysis of open-ended survey responses. Organizational Research Methods, 5, 307–336.

    Article  Google Scholar 

  • Johnson, J. A., Biegel, D. E., & Shafran, R. (2000). Concept mapping in mental health: Uses and adaptations. Evaluation and Program Planning, 23, 67–75.

    Article  Google Scholar 

  • Kersh, J., Hedvat, T. T., Hauser-Cram, P., & Warfield, M. E. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50, 883–893.

    Article  PubMed  Google Scholar 

  • Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.

    Article  PubMed  Google Scholar 

  • Lee, G. K. (2009). Parents of children with high functioning autism: How well do they cope and adjust? Journal of Developmental and Physical Disabilities, 21, 93–114.

    Article  Google Scholar 

  • Little, L. (2002). Differences in stress and coping for mothers and fathers of children with Asperger’s Syndrome and nonverbal learning disorders. Pediatric Nursing, 28, 565–583.

    PubMed  Google Scholar 

  • Myers, B. J., Mackintosh, V. H., & Goin-Kochel, R. P. (2009). “My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives. Research in Autism Spectrum Disorders, 3, 670–684.

    Article  Google Scholar 

  • Neff, L. A., & Karney, B. R. (2009). Stress and reactivity to daily relationship experiences: How stress hinders adaptive processes in marriage. Journal of Personality and Social Psychology, 97, 435–450.

    Article  PubMed  Google Scholar 

  • O’Brien, M. (2007). Ambiguous loss in families of children with autism spectrum disorders. Family Relations, 56, 135–146.

    Article  Google Scholar 

  • Phelps, K. W., Hodgson, J. L., McCammon, S. L., & Lamson, A. L. (2009). Caring for an individual with autism disorder: A qualitative analysis. Journal of Intellectual and Developmental Disability, 34, 27–35.

    Article  PubMed  Google Scholar 

  • Schopler, E., Reichler, R. J., DeVellis, R. F., & Daly, K. (1980). Toward objective classification of child autism: Childhood Autism Rating Scale (CARS). Journal of Autism and Developmental Disorders, 10, 91–103.

    Article  PubMed  Google Scholar 

  • Schumm, W. R., Anderson, S. A., Benigas, J. E., McCutchen, M. B., Griffin, C. L., Morns, J. E., et al. (1985). Criterion-related validity of the Kansas Marital Satisfaction Scale. Psychological Reports, 56, 719–722.

    Article  Google Scholar 

  • Siklos, S., & Kerns, K. A. (2007). Assessing the diagnostic experiences of a small sample of parents of children with autism spectrum disorders. Research in Developmental Disabilities, 28, 9–22.

    Article  PubMed  Google Scholar 

  • Sivberg, B. (2002). Family system and coping behaviors: A comparison between parents of children with autistic spectrum disorders and parents with non-autistic children. Autism, 6, 397–409.

    Article  PubMed  Google Scholar 

  • Trochim, W. (1989). An introduction to concept mapping for planning and evaluation. Evaluation and Program Planning, 12, 1–16.

    Article  Google Scholar 

  • Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18, 1075–1083.

    Article  PubMed  Google Scholar 

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Correspondence to Julie L. Ramisch.

Appendix: Clusters and Statements

Appendix: Clusters and Statements

Cluster title (number of statements)

Statement # in cluster

Statement

Husbands with children with autism

We communicate (9)

 
 

V18

We communicate about anything

 

V20

We have open communication for the good, bad, or otherwise

 

V26

Communication

 

V3

We’re not territorial and we work together

 

V30

Talking to her

 

V7

Work things out as they come up

 

V43

Communicating about changes of what is a priority in life

 

V1

We work together to care for our child

 

V27

Staying on the same page

We work out our differences (5)

 

V16

We try to look forward

 

V35

Our verbal combats result in talking about our differences

 

V15

We work through the problems

 

V23

We work it out when we don’t agree

 

V2

We have mutual support instead of his/her jobs

We care for and love each other (18)

 

V12

There is lots of caring between partners

 

V34

Both of us are sympathetic with each other

 

V32

Being there for each other

 

V38

Willingness to meet the others need

 

V5

Willingness to commit to the marriage and make time to spend together

 

V21

We know that we will annoy each other

 

V13

I have a strong and loving wife

 

V17

My wife is my best friend

 

V19

I love my wife

 

V31

Love

 

V14

My wife puts up with me

 

V42

Avoid situations with other people that can promote infidelity

 

V36

Having trust in each other

 

V22

We recognize that we are different but that is not bad

 

V41

Putting others need first; I do it for her and she does for me

 

V29

I try to support her

 

V37

Having a commitment to each other

 

V6

We love each other

We have foundational expectations (11)

 

V4

We share a faith in God

 

V11

We were prepared for cost of children

 

V40

Desire to not to live the same life like our parents

 

V24

We had a good foundation

 

V28

Faith

 

V39

Involvement in church, which is a common interest of ours

 

V9

We had a strong foundation

 

V33

Knowing what the negative experiences of people who have divorced are like

 

V8

We were older when we got married

 

V10

We knew what we wanted from a partner

 

V25

We took a year to just be a couple before having kids

Wives with children with autism

We communicate (17)

 

V9

Talk everything over

 

V32

We talk a lot

 

V18

Communication

 

V47

Open communication with each other

 

V23

Open communication

 

V37

We communicate a lot about our child’s needs and how we can meet those needs

 

V24

We talk about our concerns

 

V38

We communicate about our own feelings

 

V25

We talk about all decisions affecting our child

 

V40

Compassion

 

V41

Compromise

 

V20

We have to talk to one another before making any decisions or believing any doctor

 

V48

We talk things out

 

V39

Honesty

 

V56

Listening to him about what is important to him

 

V3

We have similar beliefs in how handle autism and our child

 

V51

We agree about parenting

We spend time to be a couple (14)

 

V7

We were friends for many years

 

V50

We try to spend time with each other

 

V34

We make time to be just a couple

 

V55

Taking time to spend with each other

 

V49

Giving each other breaks

 

V6

We don’t have any time now to spend together alone so it was important to have a good foundation to start

 

V26

Have someone to watch the kids overnight

 

V5

We had a really solid relationship to begin with

 

V27

We find time for us without kids

 

V14

We share common interests

 

V28

Be friends with each other

 

V8

We share everything and do everything together

 

V15

We enjoy traveling and exploring together

 

V52

My husband takes my child out to do things

We do things for ourselves (5)

 

V36

Mom goes out with girlfriends every week

 

V33

We make time for ourselves

 

V43

We have things that we do together but also we have things we do separately

 

V35

Being a couple is very important

 

V29

We started out on a good foundation

We have foundational expectations (14)

 

V17

We stand strong together so not to be divided and conquered by children

 

V31

We knew we had to work everything out

 

V13

We have to work it out the best we can

 

V53

Faith

 

V10

Our family values come before difficulties that come up

 

V30

Divorce was taken off the table when we got married

 

V11

We knew marriages were not easy when we got married

 

V4

We both believe in God

 

V54

Priority of marriage first

 

V57

Looking into the family unit and not only the autism

 

V9

We both have a strong belief in commitment of marriage and raising our family together

 

V12

We made a commitment

 

V2

We want to make marriage work and we have faith that it can work

 

V1

We have a commitment to the marriage and to each other

We encourage positive qualities for the marriage (7)

 

V42

Friendship

 

V44

Passion

 

V21

A sense of humor

 

V22

Staying on the same page

 

V46

We lean on each other

 

V16

There is teamwork in terms of sharing responsibilities

 

V45

Having his support with everything

Husbands with children who are typically developing

We care for and love each other (13)

 

S32

Honesty

 

S40

Approach everyday with respect and common sense towards your partner

 

S23

We try to meet each other’s needs

 

S34

Understanding

 

S22

I try to think of what my wife needs and give that to her

 

S24

We attended a marriage conference that helped us

 

S25

I accept who she is-the good and the bad

 

S2

No secrets

 

S3

We have a personal investment in each other

 

S38

We love each other

 

S48

We like each other

 

S50

We are pretty good friends.

 

S8

We love each other

We have commitment to each other (6)

 

S35

We make time to spend with each other

 

S37

Trust

 

S15

We have a commitment to each other

 

S21

I express my commitment level on a daily basis

 

S9

Our love means commitment

 

S53

We have a lot of similarities in what we like

We share religion and faith (3)

 

S19

Faith

 

S20

Christianity influences my life and my commitment to my wife

 

S10

Our marriage involves God

We have foundational expectations (9)

 

S13

We have common interests and values

 

S56

We have common values

 

S55

We have a common sense of family

 

S58

We share similar values in teams of family and kids

 

S59

Being children of divorced parents you don’t want your children to go through that

 

S60

We want our family to be stable

 

S49

She’s very easy to get along with

 

S54

We have a lot of mutual friends

 

S14

Our kids help to unify us and remind us that we are a family

We communicate (19)

 

S11

We have a willingness to compromise

 

S45

It is important to be able to concede when necessary

 

S47

We are able to negotiate

 

S7

You have to communicate with each other

 

S16

We go out without the kids

 

S5

I am willing and open to talk about things

 

S44

Neither of us are afraid to tell each other “no” and why

 

S31

There is nothing we won’t talk about

 

S51

We talk a lot

 

S17

Communication

 

S27

You can’t ignore things

 

S43

Bouncing ideas off each other

 

S30

Open communication

 

S46

Knowing somebody long enough

 

S36

We are straightforward with each other

 

S61

We communicate more than any other couple we know

 

S18

We check in about what is going on

 

S6

You have to know the needs of the other person

 

S12

We know and understand each other and accept each other’s faults

We work as a team and share responsibilities (12)

 

S1

My wife and I have a unified approach to everything

 

S2

We do best when we work as a team

 

S29

We share responsibilities

 

S52

We know we are on the same team

 

S62

We have an ability to work together

 

S28

I know that we are a team and have to work together

 

S26

Patience

 

S39

I have a sense of responsibility

 

S4

Willingness to be a team player and act for the good of the whole family

 

S33

We work as a team

 

S41

Raising our kids together

 

S57

We both enjoy spending time with the family during our free times

Wives with children who are typically developing

We communicate (22)

 

S52

Communication is the key

 

S53

We talk about whatever we think is important

 

S43

Open communication

 

S27

We talk a lot and everything

 

S28

We’re good at communicating

 

S30

We try to communicate as much as possible

 

S14

We talk about and address problem when they come up

 

S18

Communication

 

S57

You can’t read each other’s minds

 

S64

Flexibility

 

S6

We like to take a time out when things get rough

 

S29

We pick our battles

 

S7

Time away from each other helps us to appreciate each other

 

S35

We rarely go to bed angry

 

S2

We talk about things besides the kids.

 

S41

We have our own activities that we like to do

 

S25

We try to take extra time to make sure we communicate clearly

 

S44

We have realistic expectations for our marriage

 

S46

We are understanding with each other

 

S58

We support one another in decision-making

 

S66

Letting go of the responsibility from before the kids

 

S67

Understanding that we were raised differently

We encourage positive qualities for the marriage (25)

 

S13

We have a strong relationship

 

S55

Having fun with friends

 

S4

When we took those vows, it was until death do us part

 

S38

We are really good friends as well as husband and wife

 

S40

We try to make a little time each day to check in with each other

 

S68

We were older when we got married

 

S20

We go out with and without the kids

 

S26

We don’t get to see each other much

 

S48

We use a babysitter to go out.

 

S23

I think about my husband and try to look out for his interests

 

S36

We didn’t have kids right away

 

S1

Making sure we prioritize time with each other

 

S10

We were good friends for year before dating each other

 

S37

We both have a sense of humor

 

S49

We share a sense of humor

 

S50

We are always joking with each other

 

S65

We laugh a lot

 

S33

We dated for a long time before we got married

 

S54

Spending time together

 

S51

We try to not take things too seriously

 

S11

We share a lot of common interests

 

S19

Our marriage is a priority

 

S24

I try to make my husband feel loved

 

S34

Whenever we get a few minutes with each other, it is always beneficial

 

S56

Being together

We share religion and faith (4)

 

S5

I talk to God

 

S9

We have a central spiritual center

 

S22

We have a commitment before Jesus Christ

 

S42

Our Christian faith

We parent in the context of strong family values and support (18)

 

S8

Other couples are a support system

 

S16

We are on the same page with our kids

 

S17

We present a united front with our kids

 

S31

We want to see our children do better than we did

 

S61

We have the same ideas about raising our kids

 

S62

Our cultural traditions bound us together

 

S3

We ask for help from each other and friends and family when we need it

 

S15

We back each other up in terms of parenting

 

S32

We try to present a united front

 

S69

We work together as a team

 

S39

We love our kids

 

S47

He’s a great dad with the kids

 

S45

We had good examples of strong marriages

 

S60

We have a strong marriage because we have a strong family

 

S63

Extended family plays a large role in our relationship

 

S21

We surround ourselves with friends and family that are family oriented like we are

 

S12

We have similar values

 

S59

We have the same family values

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Ramisch, J.L., Onaga , E. & Oh, S.M. Keeping a Sound Marriage: How Couples with Children with Autism Spectrum Disorders Maintain Their Marriages. J Child Fam Stud 23, 975–988 (2014). https://doi.org/10.1007/s10826-013-9753-y

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