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What Does it Mean to be Autistic? Inter-state Variation in Special Education Criteria for Autism Services

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Abstract

The prevalence of Autism and other Autism Spectrum Disorders (ASDs) has increased dramatically in recent years. The criterion for a clinical diagnosis of Autism, however, is independent from the special education eligibility requirements for Autism services. While the DSM-IV-TR provides a nationally-accepted definition for Autism and ASD, under federal law, the special education criteria for Autism services can vary from state to state. By analyzing federal, special education child-count data as well as each state’s legal code, this study examines and compares eligibility criteria in all 50 states and Washington DC. Our results reveal inter-state variability in Autism eligibility requirements within special education, and this variability can have an impact on prevalence rates. Implications and recommendations for researchers and practitioners in clinical psychology, public health, education, pediatrics, and public policy are discussed.

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Acknowledgments

This research was supported, in part, by a summer research grant awarded by Muhlenberg College to the first author and a research grant by the Spencer Foundation (grant # grant # 2007-000115) awarded to the second author. Any opinions, findings and conclusions or recommendations expressed in this material are those of the authors and do not necessarily reflect those of Muhlenberg College or the Spencer Foundation. We gratefully acknowledge Adriana Alejandro (Claremont McKenna College) for her persistence and hard work during the data collection and coding portions of this project. We also acknowledge Crystal Coyazo (Claremont Graduate University) for her thoughtful and insightful feedback on multiple drafts of this manuscript.

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Correspondence to Tomoe Kanaya.

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MacFarlane, J.R., Kanaya, T. What Does it Mean to be Autistic? Inter-state Variation in Special Education Criteria for Autism Services. J Child Fam Stud 18, 662–669 (2009). https://doi.org/10.1007/s10826-009-9268-8

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  • DOI: https://doi.org/10.1007/s10826-009-9268-8

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