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Examining the Links Between Challenging Behaviors in Youth with ASD and Parental Stress, Mental Health, and Involvement: Applying an Adaptation of the Family Stress Model to Families of Youth with ASD

  • S.I. : Parenting Children with ASD
  • Published:
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Abstract

Raising a child with autism spectrum disorder (ASD) poses unique challenges that may impact parents’ mental health and parenting experiences. The current study analyzed self-report data from 77 parents of youth with ASD. A serial multiple mediation model revealed that parenting stress (SIPA) and parental mental health (BAI and BDI-II) appears to be impacted by challenging adolescent behaviors (SSIS-PBs) and, in turn, affect parental involvement (PRQ), controlling for social skills (SSIS-SSs). Further, the study explored the malleability of parents’ mental health over the course of a social skills intervention, and provides modest evidence that parent depressive symptoms decline across intervention. This study illustrates the importance of considering the entire family system in research on youth with ASD.

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Acknowledgments

The authors would like to acknowledge grant support from the Autism Society of Southeastern Wisconsin (ASSEW), Marquette University, and the National Center for Advancing Translational Sciences, National Institutes of Health, through Grant Numbers UL1TR001436 and KL2TR001438. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the NIH. The authors would like to thank the families for their participation in our research, as well as acknowledge the Marquette Autism Project undergraduate research team for their diligent work on this project. A portion of this project was presented as a poster presentation at the International Meeting for Autism Research (IMFAR) May 2017 conference under the title: What contributes to parenting stress and challenges in the parent-adolescent dyad?: Consideration of both parent and adolescent factors. Finally, the authors wish to extend their gratitude to Dr. Elizabeth Laugeson, Psy.D., UCLA for her assistance in offering the PEERS® interventions in Wisconsin.

Funding

This project was funded by the Autism Society of Southeastern Wisconsin, Marquette University, and the National Center for Advancing Translational Sciences, National Institutes of Health, through Grant Nos. UL1TR001436 and KL2TR001438. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the NIH.

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Author notes

  1. Bridget K. Dolan

    Present address: Medical College of Wisconsin, 8701 W Watertown Plank Rd., Milwaukee, WI, 53226, USA

  2. Sheryl Pleiss

    Present address: Great Lakes Neurobehavioral Center, 7373 France Avenue South, Suite 302, Edina, MN, 55435, USA

  3. Jeffrey Karst

    Present address: Children’s Hospital of Wisconsin, 8701 Watertown Plank Road, Milwaukee, WI, 53226, USA

  4. Audrey M. Carson

    Present address: Texas Children’s Hospital, 6621 Fannin St, Houston, TX, 77030, USA

Authors and Affiliations

  1. Marquette University, 604 N 16th St., Cramer Hall, Milwaukee, WI, 53233, USA

    Hillary K. Schiltz, Alana J. McVey, Brooke Magnus, Bridget K. Dolan, Kirsten S. Willar, Sheryl Pleiss, Jeffrey Karst, Audrey M. Carson, Christina Caiozzo, Elisabeth Vogt & Amy Vaughan Van Hecke

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Contributions

HS conceived of the study, participated in delivery of the intervention, conducted the statistical analyses and interpretation of the data, and drafted the manuscript; AM participated in the delivery of the intervention and data acquisition, assisted with interpretation of the data, and revised the manuscript; BM assisted in conducting statistical analysis, interpretation of the data, and revised the manuscript; BD, KW, SP, JK, and AC participated in the delivery of the intervention and data acquisition; CC and EV participated in the delivery of the intervention; AVVH assisted in the conception, design, and coordination of the study, reviewed the statistical analyses and interpretation of the data, and revised the manuscript. All authors read and approved the final manuscript.

Corresponding author

Correspondence to Hillary K. Schiltz.

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Conflict of interest

Hillary K. Schiltz declares that she has no conflict of interest. Alana J. McVey declares that she has no conflict of interest. Brooke Magnus declares that she has no conflict of interest. Bridget K. Dolan declares that she has no conflict of interest. Kirsten S. Willar declares that she has no conflict of interest. Sheryl Pleiss declares that she has no conflict of interest. Jeffrey Karst declares that he has no conflict of interest. Audrey M. Carson declares that she has no conflict of interest. Christina Caiozzo declares that she has no conflict of interest. Elisabeth Vogt declares that she has no conflict of interest. Amy Vaughan Van Hecke declares that she has no conflict of interest.

Ethical Approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

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Informed consent was obtained from all individual participants included in the study.

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Schiltz, H.K., McVey, A.J., Magnus, B. et al. Examining the Links Between Challenging Behaviors in Youth with ASD and Parental Stress, Mental Health, and Involvement: Applying an Adaptation of the Family Stress Model to Families of Youth with ASD. J Autism Dev Disord 48, 1169–1180 (2018). https://doi.org/10.1007/s10803-017-3446-0

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