Abstract
Once a patient and a doctor enter into a relationship, the doctor must do everything in his/her power to put the patient first and do his/her very best for the patient. Patients’ rights are at the very center of medical and surgical practice.
In this chapter, patients’ rights are discussed under the following headings: right to the best treatment available, right to be told the truth, right to know all the facts about the medical problem, right to participate in making the decision about treatment, right to consent for every procedure, right to confidentiality and privacy, right to complain, right to know who the treating team is, right to have dignity preserved, right to have education about his/her problem, right to not be abandoned, and the right to refuse treatment.
The rights and duties of the families of patients are also discussed.
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References
AANS Board of Directors. AANS Code of Ethics (2007) Available at: http://www.aans.org/en/About%20AANS/~/media/4A6862BB037742FF99B833D609D23B1E.ashx
AMA Code of Ethics (2006) Editorially revised 2006. Available at: https://ama.com.au/codeofethics
Ammar A (1997) Influence of different cultures on neurosurgical practice. Childs Nerv Syst 13:91–94
Bahus MK, Steen PA, Førde R (2012) Law, ethics and clinical judgment in end-of-life decisions-how do Norwegian doctors think? Resuscitation 83(11):1369–1373
Bernstein M, Upshur REG (2008) The challenge of difficult patients. Parkhurst Exch 16:74–75
Bramall A, Bernstein M (2014) Improving information provision for neurosurgical patients: a qualitative study. Can J Neurol Sci 41(1):66–73
Catlin A (1996) The dilemma of Jehovah’s Witness children who need blood to survive. HEC Forum 8(4):195–207
Diekema DS (2011) Adolescent refusal of lifesaving treatment: are we asking the right questions? Adolesc Med State Art Rev 22(2):213–228
World Federation of Neurological Societies, European Association of Neurological Societies (2000) Good practice: a guide for neurosurgeons. Br J Neurosurg 14:400–406
Glod W (2010) Conditional preferences and refusal of treatment. HEC Forum 22(4):299–309
Guven T, Sert G (2010) Advance directives in Turkey’s cultural context: examining the potential benefits for the implementation of patient rights. Bioethics 24(3):127–133
Hebert PC, Hoffmaster B, Glass KC et al (1997) Bioethics for clinicians: 8. Confidentiality. CMAJ 158:521–524
Johnson AG, Johnson PRV (2007) Making sense of medical ethics. Oxford University Press, New York, pp 111–123
Jotkowitz AB, Glick S (2009) The Israeli terminally ill patient law of 2005. J Palliat Care 25:284–288
Knifed E, July J, Bernstein M (2008a) Neurosurgery patients’ feelings about the role of residents in their care: a qualitative case study. J Neurosurg 108:287–291
Knifed E, Taylor B, Bernstein M (2008b) What surgeons tell their patients about the intra-operative role of residents: a qualitative study. Am J Surg 196:788–794
Marks R (2009) Ethics and patient education: health literacy and cultural dilemmas. Health Promot Pract 10(3):328–332
Muzaffar (2011) ‘To treat or not to treat’. Kerrie Wooltorton, lessons to learn. Emerg Med J 28(9):741–744
Panico ML, Jenq GY, Brewster UC (2011) When a patient refuses life-saving care: issues raised when treating a Jehovah’s Witness. Am J Kidney Dis 58(4):647–653
Pope TM (2010) Legal briefing: conscience clauses and conscientious refusal. J Clin Ethics 21(2):163–176
Redman B (2011) Ethics of patient education and how make it everyone’s ethics. Nurs Clin N Am 46(3):283–289
Sine DM, Sharpe VA (2011) Ethics, risk, and patient-centered care: how collaboration between clinical ethicists and risk management leads to respectful patient care. J Healthc Risk Manag 31(1):32–37
Spike JP (2012) Care versus treatment at the end of life for profoundly disabled persons. J Clin Ethics 23(1):79–83
Cheshire Dignity Assessment Tool (2009) Available at: http://www.dignityincare.org.uk/_library/Resources/Dignity/CSIPComment/Cheshire_Dignity_Assessment_Tool_2.pdf
Weijer C, Singer PA, Dickens BM et al (1998) Bioethics for clinicians: 16. Dealing with demands for inappropriate treatment. CMAJ 159:960–965
White DB, Wicclair M (2012) Limits on clinicians’ discretion to unilaterally refuse treatment. Am J Crit Care 21(5):361–364
World Federation of Neurosurgical Societies. Statement of ethics in neurosurgery (2007) Available at: http://www.wfns.org/filebin/WFNS%20Statement%20of%20Ethics%20in%20NS%20Mar%202008.pdf
Yu JJ, Bernstein M (2011) Brain tumor patients’ views on deception: a qualitative study. J Neurooncol 104:331–337
Zanchetta C, Bernstein M (2004) The nursing role in patient education regarding outpatient neurosurgical procedures. Axone 25:18–21
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Ammar, A., Seynaeve, G. (2014). Patients’ Rights. In: Ammar, A., Bernstein, M. (eds) Neurosurgical Ethics in Practice: Value-based Medicine. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-54980-9_4
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DOI: https://doi.org/10.1007/978-3-642-54980-9_4
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