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Behavioral Approaches to Chronic Disease in Adolescence pp 311–327Cite as

Health-Related Quality of Life Instruments for Adolescents with Chronic Diseases

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Over the past two decades, tremendous progress has been made in defining and measuring health-related quality of life (HRQOL) and in recognizing its importance as a health outcome (Palermo et al., 2008; Quittner, Davis, & Modi, 2003). More than 50 years ago, the World Health Organization proposed the first definition of HRQOL as “a state of complete physical, mental, and social well-being, and not merely the absence of disease or infirmity” (World Health Organization [WHO], 1947, p. 29). A consensus definition of HRQOL has now emerged, with agreement that it is multidimensional and includes four core domains: (1) disease state and physical symptoms, (2) functional status (e.g., performing daily activities), (3) psychological and emotional functioning, and (4) social functioning (Hays, 2005; Rothman et al., 2007).

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Authors and Affiliations

  1. Department of Psychology & Pediatrics, University of Miami, Miami, FL, USA

    Alexandra L. Quittner & Ivette Cruz

  2. Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children’s Hospital, Cincinnati, OH, USA

    Avani C. Modi

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  1. Alexandra L. Quittner
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  2. Ivette Cruz
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  3. Avani C. Modi
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  4. Kristen K. Marciel
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Correspondence to Alexandra L. Quittner .

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    Quittner, A.L., Cruz, I., Modi, A.C., Marciel, K.K. (2009). Health-Related Quality of Life Instruments for Adolescents with Chronic Diseases. In: O'Donohue, W. (eds) Behavioral Approaches to Chronic Disease in Adolescence. Springer, New York, NY. https://doi.org/10.1007/978-0-387-87687-0_23

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